Open Up a Vein & Say "Aaahhh"

Wordoxers have been asking me about my recent illness & I have avoided their questions with "I'll be blogging about it when I get the energy." I assumed that I was on the mend, but it appears that I am still battling for breath, consciousness & The American Way, & there is no energy in sight. I've never been a fan of lobby medical discussions where some Debbie Downer brings up medical malfunctions during a tournament and those not playing in the tourney discusss horror stories of their own & familial personal experiences & (w0rse) stories of encouragement. I think this mindset stems from my ongoing attitude that more than 4 people present constitutes a party & such things as tumors, phlegm & T-cells should never be discussed at a party. That can be further boiled down to my main mantra, "If it's not funny, I don't want to look at it." My best friend has further reduced this attitude to "I refuse to watch anything that doesn't have a monkey in it." I will continue my lobby boycott of all things medical but, while I have this small shred of energy, I'll try to tell what happened to me...the part I can figure out. I owe some explanations.
I have been feeling poorly since September & have been sent for many of the tests that Western Medicicine currently uses. I have have an Echogram on my heart, an Ultra-sound on my lungs, & X-rays on any organs that were just lying around looking shifty. On May 4th I was to have a Sleep Test at the local hospital. I was having a great deal of trouble breathing, but showed up (like the good sport I am) anyway. The Sleep Lab rejected me & promptly wheeled my pepper carcass back down to Emergency, where I was accepted with open arms & a dripping IV. They determined that I was in the intermediate stages of Heart Failure. {I freaked the hell out about the term "heart failure," initially mistaking it for 'cardiac arrest.' They are not the same thing. You may want to do a little research on your own & learn the difference between the two conditions before you leap onto a gurney & start pounding yourself in the chest the way I did.}
Actually, that awful moment in the ER was the best I've felt in two weeks. This is the first time I've had a prolonged hospital stay & didn't leave feeling better. While still admitted, my left leg blew up & turned painfully purple. {The work of a dastardly girple, you say? Naw, it's not like them....they don't work that way.} I seem to have had a "Baker's Cyst" rupture. This is an injury that one gets early in life & lies dormant until some other healthful disorder comes along & makes it long for the spotlight, when it cartwheels out & suddenly ruptures. I attribute it to my brief but memorable stint as a running back with the Green Bay Packers.
As if the SOB (they had that next to my name on the ER bulletin board & I again became upset until they explained it meant 'shortness of breath;') the anger at having to postpone my Sleep Test; and the fact that I was now hobbling around on a swollen eggplant, wasn't traumatic enough, I fell asleep & woke up in ICU where the nurses were yelling "tie her hands down!" I had retained dangerous levels of carbon dioxide & kept removing the mask they were trying to put over my face. I not only consider this one of the most terrifying experiences of my life, it has created a whole new set of phobias & fears in my repertoire. That hospital not only did not cure me, or even make me feel better....it made me crazier. And it happened the next night too.
My final diagnosis was Sleep Apnea, which is soundly kicking my ass. They sent me home with a much smaller mask & no nurses to tie me to the bed, but the whole thing is so intrusive that I've still not been able to sleep properly. I can't sleep, I can't think, I can't play Wordox. I am miserable & getting sicker daily.
There, now aren't you sorry you asked? If you have comments or questions, please bring them here & not to a tournament lobby where they will bum players out. Sleepy peppers are just not funny or interesting. I am rather interested in hearing if anyone else has undergone a similar experience & how they dealt with the Apnea mask they were prescribed. Mine is not user friendly.
{If I should die before I wake....take that stupid mask & shove it up Dr. Lawrence Goldstein's ass.}
8 Comments:
Awww Holly, I am so sorry for you. Well like it or not you have the sympathy but I know it doesn't help. Sleep cures so much and thats what you can't do sigh. I am hoping that things improve for you and you start to feel more like yourself or Maria Von Trapp - I can't hear the Sound of Music things without visualising you twirling round in the mountains!
Thinking of you.
Love Mum xx
By
Anonymous, at Fri Jun 08, 12:51:00 AM
(((Curly*))) I miss you so much! Your hospital stay sounds awful :(
My dad has sleep apnea and he uses a CPAP machine and mask, which he started about 6 months ago.
At first he thought he was not going to be able to use the mask at all - in fact, he started hyperventilating the very first time and thought he was having another heart attack and went to the ER. (He had a double bypass 15 years ago.)
For quite awhile the machine and mask did not help him sleep because he had such a hard time getting used to it.
However, now he is sleeping better and using it all the time, and he even travels with the machine.
Every summer my Dad goes on a trip to Appalachia with a group of about 30 other people to help fix up houses for rural folks there. Usually the sleeping conditions are quite primitive on these trips, but he is taking the machine anyway.
He has come a long way in becoming accustomed to using it. I hope that eventually you will have similar success with your mask.
Best wishes,
Dorcas
By
Anonymous, at Sat Jun 09, 03:44:00 AM
I so now where u are coming from Holly. My husband had this problem 5 years ago. He was so sleeply all he did was sleep and sleep. Fall alseep at work driving and so forth. Thanks to the wonderful internet I researched and found he may have sleep apena and then took the information I found to his doctor. He put him on a cp. This machine actually gave his life back. I know it is hard at first to get used to sleeping with it but it will really make u feel like a new person when u use it. Keep trying to use it u will be happy that u do after a good nights sleep. They do have a surgery to help sleep apena if u wanna look into it but draw back it does not help all just some sigh. Anyway good luck hun. Hope u keep trying to use ur cp and many wonderful dreams to u when u do.
Lisa AKA GG
By
Anonymous, at Sat Jun 09, 06:23:00 AM
Hiya Hotstuff,
I dont have any advice or storys for ya, i just want you to know im thinking about you and i hope you feel better soon.
Jeff
By
Anonymous, at Tue Jun 12, 10:54:00 PM
Um, she's back in the hospital. z
By
Anonymous, at Fri Jun 15, 08:30:00 PM
Thanks for the update. A few of us were wondering what was going on lately.
By
Barbara Hearn, at Sat Jun 16, 07:41:00 PM
anyone know anything??? I was thinking of Holly last nite while I watched my son and his band play. I was thinking about how Holly wrote such nice and hilarious things about being a fellow "band mom."
I hope you are doing well Holly. You are MISSED, gf.
spot
By
Anonymous, at Thu Jun 21, 07:23:00 PM
Holly,
Your ordeal reminds me of my own. A few years ago, I had a colonoscopy and X-rays and even a CAT scan leading up to an eventual diagnosis of Irritable Bowel Syndrome. All the tests seemed like a lot to go through to be told I had a "condition" and not some more serious disease. (I'm not saying I wanted a serious disease! I'm just saying!) I don't know too much about Sleep Apnea, but I don't understand how a sleeping/breathing disorder could cause the severe symptoms you are experiencing...??? And that hospital you described doesn't sound very good at all...??? At any rate, thank you for letting us know what's going on, and whatever the problem is, I hope you are getting the proper care you need to get sorted out and start feeling better. STAT.
Big hugs,
Mindi a.k.a. Cleo
By
Anonymous, at Fri Jun 29, 10:54:00 AM
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